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DEFINE Data-Driven Engagement of Families to Improve the NICU Experience

Led by the University of Colorado, Section of Neonatology, in partnership with CPCQC, the DEFINE program provides a targeted approach to understanding and improving policies and programs in NICUs throughout Colorado to increase parental engagement.

About DEFINE Data-Driven Engagement of Families to Improve the NICU Experience

To better understand and improve familial engagement within Colorado NICUs, DEFINE program participating hospitals are asked to develop a multidisciplinary team, collect and submit data, review existing practices and policies related to parental NICU involvement, and use structured quality improvement methods to improve specialized care. Critically important, NICU teams are encouraged to integrate experts with lived experience into all aspects of program development and implementation. To further develop a community of practice, DEFINE participants are encouraged to attend an annual forum, which brings together providers, parents, community-based groups, and public health agencies, to share progress and ideas, continue learning, and review performance metrics.

Why

DEFINE engages families, supports parental well-being, and empowers parents to care and advocate for their babies through implementation of system improvement processes in policies and practices, guided by robust data collection and analysis. Recent studies demonstrate that optimizing family engagement in the NICU leads to positive outcomes for both infants and their parents, including higher breastfeeding rates, shorter lengths of hospital stay, improved neurodevelopmental outcomes, and lower stress and anxiety scores for parents.


Results

Approach

DEFINE Colorado partners with NICU families, healthcare team members, and community organizations to design meaningful interventions that address real-world needs.

Sleep Well Initiative: We promote safe sleep practices by modeling clear, consistent behaviors in the NICU- helping families learn how to safely put their babies to sleep and acclimating infants to a safe sleep environment.

Communication Initiative: Our newest effort strengthens communication between families and NICU teams, aiming to reduce parental stress and anxiety through consistent, compassionate, and engaging interactions.

Results

Since the start of this program in fall 2021, participating hospitals have seen quality improvements in communication with parents in the NICU. Parents went from receiving updates on their baby’s care an average of 4 days in the first week of their baby’s admission to every day in the first week of their baby’s admission.

An average of 94.2% of families have contact with social workers within the first week of NICU hospitalization since the conception of the program in quarter 3 2021. Additionally, when the program started, the average first day of social work contact was on day 3.2. In quarter 1 of 2023, the average day of first social work contact is day 2. This is a 37.5% decrease.

Resources

DEFINE Resource Hub
DEFINE Webinars & Forums

Program Partners

This program is led by Sunah Susan Hwang, MD, MPH, PhD, and Christina Fisher, MD, MSCS, from the University of Colorado School of Medicine, Department of Pediatrics, Section of Neonatology. Any hospital with a NICU in Colorado is eligible to join DEFINE.

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Enrollment for 2026 programs is now open!

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